法洛四联症患儿家属手术等候期疾病不确定感状况调查

Abstract
Figure/Table
References (27)
Related Citation (15)

Download: PDF (465 KB) HTML (1 KB)
Export: BibTeX | EndNote (RIS)

Abstract Objective To investigate the uncertainty of illness in the family members of children with trilogy of Fallot (TOF) during the waiting period for surgery. Methods Prospectively enrolled 200 family members of children with TOF who underwent elective surgical treatment in Hunan Children’s Hospital from January 2014 to December 2020. The parents of children with TOF were evaluated by the parent’s perception uncertainty in illness scale (PPUS) during waiting period. According to the survey level of disease uncertainty, they were divided into high-level group and low-level group. This article designed a baseline data questionnaire, counted the baseline data of all children with TOF and their families, included all possible factors, and the factors influencing the uncertainty of illness in the family members of children with TOF during the operation waiting period were found out through univariate and multivariate analysis. Results The 200 family members were all associated with varying degrees of disease uncertainty, of which 148 had a high level, accounting for 74%; and 52 had a low level, accounting for 26%. There were statistically significant differences between the two groups of children’s first admission, education level of family members, family monthly income per capita, and family members’ SSRS scores (P ＜ 0.05). Children’s first admission, family members’ education level of junior high school or below, low family monthly income, and low social support were all influencing factors for the high level of illness uncertainty in the waiting period of TOF children’s family members (OR ＞ 1, P ＜ 0.05). Conclusion Family members of children with TOF have varying degrees of disease uncertainty during the waiting period for surgery, and most of the family members have high levels of disease uncertainty. It may be related to the first admission of the child to the hospital, the family’s education level of junior high school or below, low family monthly income, and low family support.

Key words： Trilogy of Fallot Operation Waiting period Uncertainty of illness Education level Income Social support

	Service

	E-mail this article
	Add to my bookshelf
	Add to citation manager
	E-mail Alert
	RSS
	Articles by authors
	TENG Sisi CHEN Si PENG Lihong

Cite this article:

TENG Sisi CHEN Si PENG Lihong. Survey of illness uncertainty in family members of children with trilogy of Fallot in the waiting period for operation[J]. 中国医药导报, 2021, 18(26): 50-53.

URL:

https://www.yiyaodaobao.com.cn/EN/ OR https://www.yiyaodaobao.com.cn/EN/Y2021/V18/I26/50

[1] Yang T，Jiang S，Yu L，et al. Life stress，uncertainty stress and self-reported illness：a representative nationwide study of Chinese students [J]. Am J Public Health，2018， 26（2）：205-209.
[2] 沐惠，安珊珊，张杨，等.法洛四联症术后患儿母亲居家照顾需求的质性研究[J].中华现代护理杂志，2017，23（2）：234-237.
[3] 陈灏珠，钟南山，陆再英.内科学[M].北京：人民卫生出版社，2018：279-280.
[4] 麦嘉轩，谢婉花，马春花，等.中文版疾病不确定感父母量表的初步修订[J].中国实用护理杂志，2013，29（28）：46-50.
[5] 张理义，孔令明，张其军，等.中国社会支持量表的研制及其信效度检验[J].临床心身疾病杂志，2014，20（6）：36-40.
[6] Yurekli I，Kestelli M，Cakir H，et al. There Are Many Unnecessary Patch Plasty Operations in tetralogy of fallot [J]. Ann Thorac Surg，2018，105（3）：989.
[7] Bell M，Biesecker BB，Bodurtha J，et al. Uncertainty，hope，and coping efficacy among mothers of children with Duchenne/Becker muscular dystrophy [J]. Clin Genet，2019，95（6）：677-683.
[8] 徐红贞，王丹，陈朔晖，等.肛门闭锁患儿主要照顾者疾病不确定感现状及影响因素分析[J].中国实用护理杂志，2020，36（18）：1405-1410.
[9] 王承云，王丽娜.恶性肿瘤患儿父母疾病不确定感的研究进展[J].上海护理，2019，19（11）：58-61.
[10] 马兰，陶亚琴，凌慧.NICU早产儿母亲疾病不确定感的影响因素分析[J].护理学杂志，2017，32（7）：71-73.
[11] 朱丹丹，鲁萍，王建平，等.新生儿重症监护室患儿母亲疾病不确定感与角色适应的相关性分析[J].中华现代护理杂志，2018，24（30）：3638-3643.
[12] Brito-Brito PR，García-Tesouro E，Fernández-Gutiérrez DA，et al. Validation of an uncertainty in illness scale adapted to use with Spanish emergency department patients and their accompanying relatives or friends [J]. Emergencias，2018，30（2）：105-114.
[13] Blake A，Asnani V，Leger RR，et al. Stigma and illness uncertainty：adding to the burden of sickle cell disease [J]. Hematology，2017，23（2）：122-130.
[14] 王翠芝，董洁景，许英彩，等.住院患儿家属期望值影响因素调查研究[J].医学动物防制，2019，35（11）：79-82.
[15] Desrosiers LR，Quinn E，Cramer S，et al. Integrating genetic counseling and testing in the pediatric oncology setting：Parental attitudes and influencing factors [J]. Pediatr Blood Cancer，2019，66（10）：e27907.
[16] 刘正伟，周万兴.罗伊适应护理模式在先心病患儿家属干预中的应用效果[J].中国医药导报，2018，15（16）：177-180.
[17] 张新芳，李凤，王瑞，等.法洛四联症患儿父母心里体验的质性研究[J].全科护理，2020，18（27）：3711-3713.
[18] 马兰，陶亚琴，凌慧.NICU早产儿母亲疾病不确定感的影响因素分析[J].护理学杂志，2017，32（7）：71-73.
[19] 吴丽娟，廖少玲，胡利人，等.住院早产儿母亲疾病不确定感现状及影响因素分析[J].重庆医学，2018，47（18）：88-91.
[20] Arias-Rojas M，Carreo-Moreno S，Posada-López C. Uncertainty in illness in family caregivers of palliative care patients and associated factors [J]. Rev Lat Am Enfermagem，2019，27（27）：e3200.
[21] 赵慧敏，毛靖，李节.COPD病人家属疾病不确定感状况及影响因素分析[J].护理研究，2019，33（8）：1390-1394.
[22] 李娜，关红.ICU患者家属疾病不确定感影响因素及干预策略的研究进展[J].中国医药导报，2017，14（18）：34-37，52.
[23] Zhang YZ. Uncertainty in Illness：Theory Review，Application，and Extension [J]. Oncol Nurs Forum，2017，44（6）：645-649.
[24] Moreland P，Santacroce SJ. Illness Uncertainty and Posttraumatic Stress in Young Adults With Congenital Heart Disease [J]. J Cardiovasc Nurs，2018，33（4）：356-362.
[25] 陆少玲，戴德栋，朱劲，等.东莞市道滘镇2型糖尿病患者痛苦现状调查与研究[J].现代医院，2019，19（2）：232-235.
[26] 刘晓虹.综合护理干预对宫颈癌患者疾病不确定感及焦虑的影响[J].中国医学创新，2019，16（1）：117-120.
[27] 李鑫.精神障碍患儿家属疾病不确定感与应对方式、社会支持的相关性研究[J].精神医学杂志，2018，31（3）：188-190.