|
|
Research progress on dynamic changes of care burden among informal caregivers for stroke patients |
GUO Lizhen1 LU Gendi1 TIAN Jun2 MENG Yunjuan2 WU Wenwen1 |
1.Department of Nursing, Shuguang Hospital Affiliated to Shanghai University of Traditional Chinese Medicine, Shanghai 201203, China;
2.Department of Neurology Intensive Care Unit, Shuguang Hospital Affiliated to Shanghai University of Traditional Chinese Medicine, Shanghai 201203, China |
|
|
Abstract Stroke has become a global public health problem due to its high incidence, disability and mortality rate. Stroke survivor may be left with different degrees of physical, mental or affective disorder after acute treatment. And most of them will make sustainable lifestyle and receive rehabilitation based on family, which require long-term support and help from their families. As a result, the caregiver endurance enormous physical, psychological and social pressure, which is not beneficial to the recovery of stroke survivor. This paper summarizes the characteristics of caring burden, the dynamic changes of caring burden with time flow and its related factors, the side effects of caring burden and the strategies on how to reduce the burden of caring. And eventually laying a theoretical suggestion on how to reduce care burden. Therefore, it lays the fundation for clinical improvement of emotional support of cavegivers.
|
|
|
|
|
[1] 王陇德,刘建民,杨弋,等.我国脑卒中防治仍面临巨大挑战——《中国脑卒中防治报告2018》概要[J].中国循环杂志,2019,34(2):105-119.
[2] 丁春戈,张振香,曹莹,等.中国居家脑卒中患者的照护现况及对策[J].中国实用神经疾病杂志,2019,22(1):64-67.
[3] 喻伟霞,王海芳,钮美娥,等.脑卒中患者亲属照护者居家照护体验的系统评价[J].中国护理管理,2019,19(1):35-42.
[4] Gertrude N,Kawuma R,Nalukenge W,et al. Caring for a stroke patient:the burden and experiences of primary caregivers in Uganda-a qualitative study [J]. Nurs Open,2019,6(4):1551-1558.
[5] Muditha WM,Kerstin S,Elgán C. Caring for stroke survivors:experiences of family caregivers in Sri Lanka-a qualitative study [J]. Top Stroke Rehabil,2018,25(6):397-402.
[6] Oni OD,Olagunju AT,Okpataku CI,et al. Predictors of caregiver burden after stroke in Nigeria:effect on psychosocial well-being [J]. Indian J Psychiatry,2019,61(5):457-464.
[7] Chuluunbaatar E,Pu C,Chou YJ. Changes in caregiver burden among informal caregivers of stroke patients in Mongolia [J]. Top Stroke Rehabil,2017,24(4):314-321.
[8] Wu CY,Skidmore ER,Rodakowski J. Relationship consensus and caregiver burden in adults with cognitive impairments 6 months following stroke [J]. PM&R,2019,11(6):597-603.
[9] Hu P,Yang Q,Kong LN,et al. Relationship between the anxiety/depression and care burden of the major caregiver of stroke patients [J]. Medicine,2018,97(40):e12638.
[10] Zhu W,Jiang Y. Determinants of caregiver burden of patients with haemorrhagic stroke in China [J]. Int J Nurs Pract,2018,25(2):e12719.
[11] Han Y,Liu Y,Zhang X,et al. Chinese family caregivers of stroke survivors:determinants of caregiving burden within the first six months [J]. J Clin Nurs,2017,26(23/24):4558-4566.
[12] Visser-Meily A,Post M,van de Port I,et al. Psychosocial functioning of spouses of patients with stroke from initial inpatient rehabilitation to 3 years poststroke:course and relations with coping strategies [J]. Stroke,2009,40(4):1399-1404.
[13] Jaracz K,Grabowska-Fudala B,Górna K,et al. Burden in caregivers of long-term stroke survivors:prevalence and determinants at 6 months and 5 years after stroke [J]. Patient Educ Couns,2015,98(8):1011-1016.
[14] Swinkels JC,Broese van Groenou MI,de Boer A,et al. Male and female partner-caregivers′ burden:does it get worse over time? [J]. Gerontologist,2019,59(6):1103-1111.
[15] Pucciarelli G,Ausili D,Galbussera AA,et al. Quality of life,anxiety,depression and burden among stroke caregivers:a longitudinal,observational multicentre study [J]. J Adv Nurs,2018,74(8):1875-1887.
[16] Kruithof WJ,Post MW,van Mierlo ML,et al. Caregiver burden and emotional problems in partners of stroke patients at two months and one year post-stroke:determinants and prediction [J]. Patient Educ Couns,2016,99(10):1632-1640.
[17] Pont W,Groeneveld I,Arwert H,et al. Caregiver burden after stroke:changes over time? [J]. Disabil Rehabil,2018,44(3):360-367.
[18] Zhu W,Jiang Y. A meta-analytic study of predictors for informal caregiver burden in patients with stroke [J]. J Stroke Cerebrovasc Dis,2018,27(12):3636-3646.
[19] Mandowara B,Patel AN,Amin AA,et al. Burden faced by caregivers of stroke patients who attend rural-based medical teaching hospital in Western India [J]. Ann Indian Acad Neurol,2020,23(1):38-43.
[20] McCullagh E,Brigstocke G,Donaldson N,et al. Determinants of caregiving burden and quality of life in caregivers of stroke patients [J]. Stroke,2005,36(10):2181-2186.
[21] Tseng CN,Huang GS,Yu PJ,et al. A qualitative study of family caregiver experiences of managing incontinence in stroke survivors [J]. PLoS One,2015,10(6):e0129540.
[22] Huang CY,Sousa VD,Perng SJ,et al. Stressors,social support,depressive symptoms and general health status of Taiwanese caregivers of persons with stroke or Alzheimer′s disease [J]. J Clin Nurs,2009,18(4):502-511.
[23] Loi SM,Dow B,Moore K,et al. The adverse mental health of carers:does the patient diagnosis play a role? [J]. Maturitas,2015,82(1):134-138.
[24] Gbiri CA,Olawale OA,Isaac SO. Stroke management:informal caregivers′ burdens and strians of caring for stroke survivors [J]. Ann Phys Rehabil Med,2015,58(2):98-103.
[25] Rigby H,Gubitz G,Eskes G,et al. Caring for stroke survivors:baseline and 1-year determinants of caregiver burden [J]. Int J Stroke,2009,4(3):152-158.
[26] Karahan AY,Kucuksen S,Yilmaz H,et al. Effects of rehabilitation services on anxiety,depression,care-giving burden and perceived social support of stroke caregivers [J]. Acta Medica,2014,57(2):68-72.
[27] Choi-Kwon S,Mitchell PH,Veith R,et al. Comparing perceived burden for Korean and American informal caregivers of stroke survivors [J]. Rehabil Nurs,2009,34(4):141-150.
[28] Klimova B,Valis M,Kuca K,et al. E-learning as valuable caregivers′ support for people with dementia-a systematic review [J]. BMC Health Serv Res,2019,19(1):781.
[29] Day CB,Bierhals CCBK,Santos NOD,et al. Nursing home care educational intervention for family caregivers of older adults post stroke (SHARE):study protocol for a randomised trial [J]. Trials,2018,19(1):96. |
|
|
|