|
|
Advances in the research of pre-medical care plan for dementia patients |
WANG Bo1 YIN Yongtian2▲ ZHANG Ping1 ZHANG Xiaoman1 CHEN Lijun1 |
1.College of Nursing, Shandong University of Traditional Chinese Medicine, Shandong Province, Ji′nan 250000, China;
2.Office of Academic Affairs, Shandong University of Traditional Chinese Medicine, Shandong Province, Ji′nan 250355, China |
|
|
Abstract The population of dementia group is increasing rapidly, which brings heavy psychological and care burden to patients, families and society. Advance care planning (ACP), as an important part of high-quality care for Alzheimer′s disease and other dementia patients, can help improve the quality of life and hospice care for dementia patients. This paper reviews the related concepts of ACP, the necessity of ACP implementation in dementia patients, the status of ACP implementation, the implementation plan and effect, and the influencing factors that hinder its implementation, in order to provide reference for better implementation of ACP in dementia population in China in the future.
|
|
|
|
|
[1] Harrison Dening K,Castle E,Scates C,et al. Advance care plans in dementia:user-centred design [J]. BMJ Support Palliat Care,2019,pii:bmjspcare-2018-001700.
[2] 邓仁丽,王守碧,张江辉,等.中西文化视野下预立医疗照护计划在医疗卫生体系中的植入[J].中国护理管理,2019,19(3):321-325.
[3] Sellars M,Chung O,Nolte L,et al. Perspectives of people with dementia and carers on advance care planning and end-of-life care:A systematic review and thematic synthesis of qualitative studies [J]. Palliat Med,2019,33(3):274-290.
[4] Goede M,Wheeler M. Advance directives,living wills,and futility in perioperative care [J]. Surg Clin North Am,2015,95(2):443-451.
[5] Jox R. Preparing existential decisions in later life. Advance care planning. In:Planning Later Life Bioethics and Public Health in Ageing Societies [M]. London and New York:Routledge,2017:164-180.
[6] Gaster B,Larson EB,Curtis JR. Advance Directives for Dementia:Meeting a Unique Challenge [J]. JAMA,2017, 318(22):2175-2176.
[7] Hammes BJ,Rooney BL. Death and end-of-life planning in one midwestern community [J]. Arch Intern Med,1998, 158(4):383-390.
[8] Sudore RL,Lum HD,You JJ,et al. Defining advance care planning for adults:a consensus definition from a multidisci-plinary delphi panel [J]. J Pain Symptom Manage,2017,53(5):821-832.
[9] Loupatatzis B,Krones T. Die Patientenverfügung 《Plus》-das Konzept des Advance Care Planning (ACP) [J]. Praxis (Bern 1994):2017,106(25):1369-1375.
[10] Vandervoort A,Houttekier D,Vander Stichele R,et al. Quality of Dying in Nursing Home Residents Dying with Dementia:Does Advanced Care Planning Matter? A Nationwide Postmortem Study [J]. PLoS One,2014,9(3):e91130.
[11] Givens JL,Sudore RL,Marshall GA,et al. Advance care planning in community-dwelling patients with dementia [J]. J Pain Symptom Manage,2018,55(4):1105-1112.
[12] Jennings LA,Turner M,Keebler C,et al. The Effect of a Comprehensive Dementia Care Management Program on End-of-Life Care [J]. J Am Geriatr Soc,2019,67(3):443-448.
[13] Dening KH,King M,Jones L,et al. Healthcare decision-making:past present and future,in light of a diagnosis of dementia [J]. Int J Palliat Nurs,2017,23(1):4-11.
[14] Emanuel LL,Danis M,Pearlman RA,et al. Advance care plan-ning as a process:structuring the discussions in practice [J]. JAm Geriatr Soc,1995,43(4):440-446.
[15] Schrijvers D,Cherny NI. ESMO clinical practice guidelines on palliative care:advanced care planning [J]. Ann Oncol,2014,25(Suppl 3):iii138-iii142.
[16] Harrison Dening K,King M,Jones L,et al. Correction:advance care planning in dementia:do family carers know the treatment preferences of people with early dementia? [J]. PLoS One,2016,11(8):e0161142.
[17] Teixeira AA,Hanvey L,Tayler C,et al. What do Canadians think of advanced care planning?Findings from an online opinion poll [J]. BMJ Support Palliat Care 2015,5(1):40-47.
[18] Ngo J,Holroyd-leduc JM. Systematic review of recent dementia practice guidelines [J]. Age Ageing,2015,44(1):25-33.
[19] 王韶如,鲁腾雄,陈珍红,等.与末期癌症患者讨论预设医疗指示是否可行?一项前瞻性定群研究[J].香港医学杂志,2012,18(3):178-185.
[20] Beck ER,Mcilfatrick S,Hasson F,et al. Nursing homemanager′s knowledge,attitudes and beliefs about advance care planning for people with dementia in long-term care settings:A cross-sectional survey [J]. J Clin Nur,2017, 26(17/18):2633-2645.
[21] Harrison Dening K. Advance care planning and people with dementia. In:Thomas K,Lobo B,Detering K,eds.Advance care planning in end of life care [M]. 2nd edn.Oxford:Oxford University Press,2018:181-194.
[22] 谌永毅,成琴琴,王英,等.护理人员预立医疗照护计划知信行现状及对策分析[J].中国护理管理,2019,19(3):334-340.
[23] 張婷.臺灣與美國預立醫療照護諮商特色之比較研究[J].法學論著,2018,69(5):59-73.
[24] 张洁,张丹丹,李虹,等.老年病房护士预立医疗照护计划的知信行现状调查[J].中国护理管理,2018,18(9):1197-1201.
[25] Chmelik E,Emtman R,Borisovskaya A,et al. Communication in dementia care [J]. Neurodegener Dis Manag,2016,6:479-490.
[26] Stirling C,Mclnerney F,Andrews S,et al. A tool to aid talking about dementia and dying--development and evaluation [J]. Collegian,2014,21:337-343.
[27] 章然.我国临终关怀及其医疗保险方式探索研究[D].杭州:浙江财经大学,2015.
[28] Cohen SM,Volandes AE,Shaffer ML,et al. Concordance between Proxy Level of Care Preference and Advance Directives among Nursing Home Residents with Advanced Dementia:A Cluster Randomized Clinical Trial [J]. J Pain Symptom Manage,2019,57(1):37-46.
[29] Sudore RL,Knight SJ,Mcmahan RD,et al. A novel website toprepare diverse older adults for decision making and advancecare planning:a pilot study [J]. J Pain Symptom Manage,2014,47(4):674-686.
[30] Hugo J,Ganguli M. Dementia and cognitive impairment:epidemiology,diagnosis,and treatment [J]. Clin Geriatr Med,2014;30(3):421-442.
[31] Bosisio F,Jox RJ,Jones L,et al. Planning ahead with dementia:what role can advance care planning play?A review of opportunities and challenges [J]. Swiss Med Wkly,2018,30(148):w14706.
[32] Van den Block L. Advancing research on advance care planning in dementia [J]. Palliat Med,2019,33(3):259-261.
[33] 张丹丹,李虹,赵璠,等.社区医护人员预立医疗照护计划知信行的调查[J].护理学杂志,2019,34(1):77-79, 102-103.
[34] 王守碧,陈柳柳,张江辉,等.痴呆患者预立医疗照护计划的研究进展[J].医学与哲学,2019,40(11):26-30.
[35] Brazil K,Carter G,Cardwell C,et al. Effectiveness of advance care planning with family carers in dementia nursing homes:A paired cluster randomized controlled trial [J]. Palliat Med,2018,32(3):603-612.
[36] 王晓瑾,潘宣.慢性非恶性疾病患者家属预立医疗照护计划接受度现状分析[J].世界最新医学信息文摘,2018, 18(48):210,226.
[37] Bryant J,Turon H,Waller A,et al. Effectiveness of interventions to increase participation in advance care planning for people with a diagnosis of dementia:a systematic review [J]. Palliat Med,2019,33(3):262-273.
[38] Piers R,Albers G,Gilissen J,et al. Advance care planning in dementia:recommendations for healthcare professionals [J]. BMC Palliat Care,2018,17(1):88.
[39] Sellars M,Chung O,Nolte L,et al. Perspectives of people with dementia and carers on advance care planning and end-of-life care:a systematic review and thematic synthesis of qualitative studies [J]. Palliat Med,2019,33(3):274-290.
[40] Koopmans RT,van der Steen JT,Bakker C. Palliative care in people with young-onset dementia (YOD):an undiscovered area! [J]. J Am Med Dir Assoc,2015,16(12):1008-1009. |
|
|
|