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Investigation on family life quality of children with bronchiolitis obliterans and analysis of influencing factors |
ZHONG Lina1 LIU Huayan1▲ CHEN Yanping1 DING Fen1 AN Zhaohui1 YI Shuyu1 WU Bichen1 TAN Xiaoyan2 |
1.Department of Respiratory Medicine, Hunan Children’s Hospital, Hunan Province, Changsha 410007, China;
2.School of Nursing, Hunan University of Chinese Medicine, Hunan Province, Changsha 410208, China
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Abstract Objective To investigate the family life quality of children with bronchiolitis obliterans (BO), to discuss and analyze its influencing factors. Methods A total of 212 children with BO and their parents who were treated in the Department of Respiratory Hunan Children’s Hospital from January 2018 to December 2021 were selected as research objects by convenience sampling method. General situation questionnaire, family quality of life scale and parents coping style scale were used to investigate. Single factor analysis, Pearson correlation analysis and multiple linear regression analysis were used to explore the influencing factors. Results The score of family life quality of BO children was 171.00 (166.00, 181.00) points, which was generally low. There were statistically significant differences in family life quality scores of BO children with different ages, whether they were the only child, course of disease, parents’ education and occupational status, monthly family income, time of first medication, and family residence (P<0.05). Multiple linear regression analysis showed that family residence, parents’ education level, disease course, and parents’ coping style were influencing factors of family life quality of BO children (P<0.05). Conclusion The family life quality of children with BO needs to be further improved. Medical staff should pay attention to families of children with BO in rural areas, parents with low education level and the short course of disease, popularize health knowledge of BO disease and psychological counseling for them, and provide guidance for family cooperation. At the same time, it is suggested that the government actively carry out family mutual assistance services and social welfare assistance services, and provide health education, temporary family care and financial support for BO families, so as to further improve the quality of life of families with BO children.
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