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| Relationship between maternal disease uncertainty and family care of very low birth weight premature infants |
| WU Yan ZHOU Jingxin WANG Liwei▲ |
Department of Neonatology, Xinhua Hospital Affiliated to Shanghai Jiao Tong University School of Medicine, Shanghai 200092, China
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Abstract Objective To analyze the relationship between maternal disease uncertainty and family care of very low birth weight preterm infants, and to expand the intervention channels for improving maternal disease uncertainty. Methods A total of 115 mothers of very low birth weight preterm infants who were treated in the neonatal intensive care unit of Xinhua Hospital Affiliated to Shanghai Jiao Tong University School of Medicine from June 2020 to December 2021 were investigated by cross-sectional investigation. The survey items included the uncertainty of disease, family care, anxiety, and depression; the relationship between maternal disease uncertainty and family care of very low birth weight premature infant were analyzed; a linear regression model was constructed to analyze the effect of family care on the maternal disease uncertainty of very low birth weight preterm infants. Results A total of 115 questionnaires were distributed, and 108 were effectively received, with effective recovery of 93.91%. The Mishel’s uncertainty in illness scale-family member form (MUIS-FM) score of 108 preterm mothers was (74.58±11.64) points. The family caring index questionnaire (APGAR) score was 7.00 (6.00, 7.00) points. self-rating anxiety scale (SAS) and self-rating depressive scale (SDS) scores were (55.78±4.24) points and (53.49±4.15) points respectively. There was a negative correlation between MUIS-FM score and APGAR score (r＜0, P＜0.05), and positively correlated with SAS and SDS scores (r＞0, P＜0.05); APGAR score was negatively correlated with SAS and SDS scores (r＜0, P＜0.05). There were significant differences in MUIS-FM score among different ages and gestational history in mothers of very low birth weight preterm infants (P＜0.05). APGAR score, age, and pregnancy history had an impact on the maternal disease uncertainty of very low birth weight premature infants (P＜0.05), linear regression equation: Y=78.998-1.529×APGAR score+10.470×age+7.189×pregnancy history. Conclusion The maternal disease uncertainty of very low birth weight premature infants is related to family care. Lack of family care, advanced maternal age, and first-time maternal age care can increase maternal disease uncertainty.
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