|
|
|
| Analysis of the current status and influencing factors of the care burden of donors for pediatric liver transplantation#br# |
| HE Ting1 TENG Xiaoyun1 YANG Qiaoling2 WEI Qin3 |
1.The First Clinical Medical College, Guangxi Medical University, Guangxi Zhuang Autonomous Region, Nanning 530021, China;
2.Department of Organ Transplantation, the First Affiliated Hospital of Guangxi Medical University, Guangxi Zhuang Autonomous Region, Nanning 530021, China;
3.Department of Nursing, the First Affiliated Hospital of Guangxi Medical University, Guangxi Zhuang Autonomous Region, Nanning 530021, China |
|
|
|
Abstract Objective To understand the current situation of donor care burden in pediatric liver transplantation and to analyze the influencing factors. Methods The convenience sampling method was adopted to select 110 pediatric liver transplant donors admitted to hospital from January 2018 to March 2021 in the organ transplantation department of a tertiary hospital in Guangxi as the research objects. The general information questionnaire, caregiver burden scale, social support rating scale for investigation were used to survey. Results The total score of care burden for children liver transplantation donors was (37.16±12.92) points, of which the personal burden dimension was (18.81±6.52) points, and the responsibility burden dimension was (26.41±6.53) points, which was at a moderate level of care burden. There were statistically significant differences in the scores of the care burden of liver transplantation donors for children of different ages, postoperative pediatric intensive care unit (PICU) hospitalization days, complications, only child, postoperative recovery, hospital stay and donor education level, daily nursing time, family average monthly income, physical condition, and degree of social support (P ＜ 0.05). Multiple linear regression analysis showed that the number of postoperative PICU hospitalization days, recovery, family average monthly income and physical condition of the donor’s family were independent risk factors for the burden of care for the donor of pediatric liver transplantation (P ＜ 0.05). Conclusion The burden of care for pediatric liver transplantation donors is heavier and the degree of care preparation is low. Medical staff should adopt individualized intervention measures to reduce the burden of donor care and provide a basis for clinical nursing intervention.
|
|
|
|
|
|
[1] Akbulut S，Gunes G，Saritas H，et al. Differences in parents of pediatric liver transplantation and chronic liver disease patients [J]. World J Clin Cases，2020，8（11）：2162-2172.
[2] 杨梅雨，张新萍，尹强，等.儿童肝移植20例围手术期并发症临床分析[J].中国小儿急救医学，2020，27（5）：385-387.
[3] 易述红，杨扬，陈规划.多学科合作，努力达到儿童肝移植的最佳疗效[J].器官移植，2020，11（4）：431-434.
[4] Mür■ide Z，Hilal YE，Emin DM. The Effects of a Therapeutic Play/Play Therapy Program on the Fear and Anxiety Levels of Hospitalized Children After Liver Transplantation [J]. J Perianesth Nurs，2021，36（1）：81-85.
[5] 李琳，杨丽，董淳强，等.儿童肝移植供肝者心理体验的质性研究[J].中国实用护理杂志，2019，35（36）：2853-2857.
[6] 刘玉明.癫痫患儿父母照顾负担、社会支持和生活质量的相关性研究[D].长沙：湖南师范大学，2020.
[7] 程敏，任红霞，何淑贞.肛门闭锁术后患儿父母照顾负担与社会支持的相关性研究[J].中国社会医学杂志，2020， 37（5）：518-521.
[8] Moayed MS，Ebadi A，Khodaveisi M，et al. Factors influencing health self-management in adherence to care and treatment among the recipients of liver transplantation [J]. Patient Prefer Adherence，2018，12：2425-2436.
[9] Zarit SH，Todd PA，Zarit JM. Subjective burden of husbands and wives as caregivers：a longitudinal study [J]. Gerontologist，1986，26（3）：260-266.
[10] 王烈，杨小湜，侯哲，等.护理者负担量表中文版的应用与评价[J].中国公共卫生，2006，22（8）：970-972.
[11] 肖水源.《社会支持评定量表》的理论基础与研究应用[J].临床精神医学杂志，1994：98-100.
[12] 余祖琳，潘月瑢，胡艳艳，等.癫痫患儿直接照顾者心理状况及其相关影响因素研究[J].护理实践与研究，2020，17（10）：5-8.
[13] 吴娟，万兴丽，苏绍玉，等.80例极低出生体质量儿母亲出院准备度得分水平分析[J].护理学报，2018，25（16）：50-53.
[14] Ohnemus D，Neighbors K，Rychlik K，et al. Health-Related Quality of Life and Cognitive Functioning in Pediatric Liver Transplant Recipients [J]. Liver Transpl，2020， 26（1）：45-56.
[15] Rodijk LH，Schins E，Witvliet MJ，et al. Quality of Life in Parents of Children With Biliary Atresia [J]. J Pediatr Gastroenterol Nutr，2020，71（5）：641-646.
[16] 苗苗，吴宁宁，张晓辉，等.先天性心脏病手术患儿照顾者负担现状及影响因素分析[J].中国护理管理，2019， 19（7）：1011-1016.
[17] 李培越，秦红艳，王晓艳，等.ICU幸存者ICU后综合征对主要照顾者负担水平的影响[J].中国实用护理杂志，2018，34（32）：2535-2538.
[18] Lai JC，Ufere NN，Bucuvalas JC. Liver Transplant Survivorship [J]. Liver Transpl，2020，26（8）：1030-1033.
[19] Killian MO，Triplett KN，Masood SS，et al. Measurement of health-related quality of life in pediatric organ transplantation recipients：a systematic review of the PedsQL transplant module [J]. Qual Life Res，2020，29（5）：1137-1146.
[20] 张海明，朱志军.儿童肝脏恶性肿瘤的肝移植适应证[J].临床肝胆病杂志，2021，37（2）：260-262.
[21] 刘燕娜，李海燕，黄海英.儿童血液病主要照顾者预期性悲伤现状及其影响因素[J].护理研究，2021，35（3）：526-529.
[22] 罗素云.白血病患儿主要照顾者压力负担与生活质量的相关性分析[J].护理实践与研究，2020，17（20）：27-29.
[23] 王静，何琨，袁美锦，等.基于同伴教育的延续护理在学龄期1型糖尿病患儿老年照顾者中的应用研究[J].护理研究，2020，34（15）：2633-2639.
[24] 张楠，韩月姣，王亚菲，等.105例肠造口患儿主要照顾者照顾负担现状及影响因素分析[J].护理学报，2019， 26（18）：51-54.
[25] 徐小奇，周德媛，王春燕.互动式护理模式在哮喘患儿中的应用效果及对患儿行为问题、照顾者自我效能的影响[J].中国医药科学，2021，11（1）：25-28，42.
[26] 周春英，郁峰.阻塞性睡眠呼吸暂停低通气综合征患儿主要照护者焦虑状况的影响因素分析[J].中国现代医生，2020，58（14）：63-66.
[27] Yayan EH，Düken ME. A Comparison of Caregiving Burden and Social Support Levels of Parents of Children Undergoing Liver Transplant [J]. J Pediatric Nurs，2019， 47：e45-e50. |
|
|
|
