Abstract：Objective To investigate the uncertainty of illness in the family members of children with trilogy of Fallot (TOF) during the waiting period for surgery. Methods Prospectively enrolled 200 family members of children with TOF who underwent elective surgical treatment in Hunan Children’s Hospital from January 2014 to December 2020. The parents of children with TOF were evaluated by the parent’s perception uncertainty in illness scale (PPUS) during waiting period. According to the survey level of disease uncertainty, they were divided into high-level group and low-level group. This article designed a baseline data questionnaire, counted the baseline data of all children with TOF and their families, included all possible factors, and the factors influencing the uncertainty of illness in the family members of children with TOF during the operation waiting period were found out through univariate and multivariate analysis. Results The 200 family members were all associated with varying degrees of disease uncertainty, of which 148 had a high level, accounting for 74%; and 52 had a low level, accounting for 26%. There were statistically significant differences between the two groups of children’s first admission, education level of family members, family monthly income per capita, and family members’ SSRS scores (P ＜ 0.05). Children’s first admission, family members’ education level of junior high school or below, low family monthly income, and low social support were all influencing factors for the high level of illness uncertainty in the waiting period of TOF children’s family members (OR ＞ 1, P ＜ 0.05). Conclusion Family members of children with TOF have varying degrees of disease uncertainty during the waiting period for surgery, and most of the family members have high levels of disease uncertainty. It may be related to the first admission of the child to the hospital, the family’s education level of junior high school or below, low family monthly income, and low family support.
滕思思 陈思 彭丽红. 法洛四联症患儿家属手术等候期疾病不确定感状况调查[J]. 中国医药导报, 2021, 18(26): 50-53.
TENG Sisi CHEN Si PENG Lihong. Survey of illness uncertainty in family members of children with trilogy of Fallot in the waiting period for operation. 中国医药导报, 2021, 18(26): 50-53.
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